Saturday, September 2, 2017

Day 4 on meds - Saturday

I got to spend the whole day with Linc today. Again at home he was doing much better. I would say the cursing was a bit more than Friday and he was again correcting the negative things he says. He absolutely hates when he says something negative about someone that he immediately says the positive.

He was very upset that he kept saying, "Santa sucks just kidding santa is awesome." He asked if I thought Santa knew he had TS and didn't really mean the things he said. He seemed very worried that Santa would realize but I assured him Santa was totally aware and would not be upset at all with his tics. That gave him some relief.

He has been saving his money and decided today was the day he wanted to go to the toy store and spend some on Legos. So he and I headed out to the toy store. Gotta say there isn't anything quite like your adorable 8 year old walking down the aisle saying, "what the fuck what the fuck." The worry and pressure he felt in the toy store really showed. He was very excited at all the choices and that he had saved up so much so he was on rapid fire with his cursing. He was trying to cover his mouth and say it quieter. He did say, "I wish there were no little kids here so they wouldn't hear my tic" We picked out his legos, paid and headed for the car.

Once in the car I asked him how he was feeling. He said he felt so bad for the bad words and wished people knew he didn't mean to do it. And he wished people weren't judging him. I told him even without the tics people who care and love you will never judge you and people who do judge you aren't the ones that care and love you so there was no need to take to heart what those people think. I asked him if he would like to make a card that he could give people that told them what TS was that way if he thought people were judging him or didn't like what he was doing he could give them the card and then he would be taking a step towards teaching people how different we all could be. He loved the idea so when we got home we designed this card:



He loves them and can't wait till we get them.

We also called the Assistant principal and she was amazing on the phone. Letting Linc know everyone was there to support him and that they know he is a good kid. That the teachers and staff are there to make school awesome for him and he just needs to be himself. She also let him know that the principal, who Linc absolutely adores, had a student his first year of teaching that had TS so he understands what Linc is going through and worried about and he is always there for Linc. It was a fantastic phone call.

We were invited to a close friends house for dinner but at first Linc didn't want to go. The toy store was a bit hard on him and he was finally feeling a bit calmed down working on his legos. But he suddenly changed his mind and said, "I think it would be good to go." So we got dressed and headed over. Everyone there knew about his current tics and he came into the house saying, "I have TS and say some things I shouldn't but I don't mean it. Just want you to know." All the kids headed to the basement and had a blast. I asked his sister and her best friend at the end of the night how he was and they said he hardly cursed. The friend said she heard him say hell a couple of times but that was it. He came home very happy and went right to bed. It was good spending the evening with people he wasn't worried about judging him.

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